Peter Frates, one of the main inspirations behind the Ice Bucket Challenge, has sadly passed away aged 34. His family released a statement by Boston College.
Frates suffered from amyotrophic lateral sclerosis ( otherwise known as ALS and Lou Gehrig’s disease), a neurodegenerative disease that affects the brain and spinal cord – the condition results in the deterioration of neurons responsible for motor function.
According to the statement, Frates “passed away surrounded by his loving family, peacefully.”
In 2014, Along with Anthony Senerchia Jr ( who passed away in 2017), Frates helped inspire the ALS Ice Bucket Challenge, a social media phenomenon where users dumped water on over their head, share footage and encourage their friends to do the same – to raise awareness for ALS. In total, The Challenge raised nearly AU$170 million over just eight weeks according to the ALS Association.
His family is encouraging those who want to get involved to donate to the Peter Frates Family Foundation. The organisation’s mission is “to aid progressed ALS patients in their desire to stay at home with those who love them most.”
“We ask that you celebrate Pete and the hope that he has given to so many by following his daily affirmation,” the statement reads.
“Be passionate, be genuine, be hardworking and don’t ever be afraid to be great.”